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Jun

Autistic Aug Comm Users

Posted by ballastexistenz 

This is going to be a list of articles or websites by autistic people who use augmentative communication a significant amount of the time. There’s a few things I am not trying to do by writing this page:

  • I am not trying to do the “Wow, look at the amazing autistic specimen that writes!” zoo exhibit crud.
  • I am not trying to say that autistic people who largely use writing to communicate in the offline world, are somehow more autistic, or more correct about autism, or better than, or worse than, other autistic people.
  • I am not trying to agree with every single thing written by an autistic person who uses augmentative communication.

What I am trying to do is deal with a situation where people are willing to accept that I use aug comm successfully, but believe that I am unique, or rare, or the only one, or something else like that. I’m none of the above.

Some of the people on this list use aug comm exclusively. Some use it only some of the time. Some use it rapidly, some slowly, some different speeds at different times. Some can read out loud what they type, some cannot. Some started out able to speak and lost that ability either gradually or rapidly, some have never spoken, some cannot use speech in a communicative way, and some have always spoken but have never been comfortable with it for many uses. Some use physical or emotional support to point and some do not, many started with it and continued without. Some look at the keyboard, and some, regardless of number of fingers they use, do not. All of these things can be mixed and matched. So there’s a lot of diversity here.
Links in bold are the person’s website, which may contain many articles.

People and their websites and articles
Misc. People

  • Poetry from the May 1998 Syracuse FC Conference
  • Defining Autistic Lives
  • Autistics Speak

Richard Attfield

  • Letter
  • My Half of the Tide
  • Who Dug Me Up From the Land of the Dead?

Roy Bedward

  • Roy Bedward (Breaking the Barriers)

Larry Bissonnette

  • My Classic Life As An Artist
  • Beyond Questions and Answers
  • Right To Communicate
  • Being Laptopped into World of Personal Expression

Jamie Burke

  • Celebrating 25 Years of I.D.E.A.
  • The School of My Dreams
  • Inside the Edge: A Journey to Using Speech through Typing

Elana Connor

  • Why Retards Are Sad In This World

Robert Cutler

  • In Memoriam: Gunnar Dybwad

Kim Duff

  • What Is Autism?

Tyler Fihe

  • Relentless Activism
  • Tyler’s Survey

Peyton Goddard

  • It’s Your Move
  • Peyton Goddard (Breaking the Barriers)

Lincoln Grigsby

  • Poetry

Eve Hanf-Enos

  • Taming the Untameable

John Jameson

  • Four Poems

Sharisa Kochmeister

  • Poetry
  • Reflections on a Year of Turmoil and Growth
  • FC and Me
  • Excerpts from Shattering Walls
  • To Have a Voice is to Have a Choice
  • What Frontline Didn’t Tell You

Schlomo Lowinger

  • Schlomo Lowinger (Breaking the Barriers)

Eugene Marcus

  • How FC Users and Their Professional Supporters Can Define and Defend Success in Facilitated Communication
  • Outrigging the Partnership: Reflections on Collaborative Songwriting
  • The Jenn and Gene Comedy Hour
  • Advice to Peer Supporters
  • On Almost Becoming a Person
  • Compulsion, and Yes, Freedom Too
  • My Life Among the Chatterers
  • My New Years Wishes
  • Helping Facilitated Communication Speakers Make Friends

Tito Rajarshi Mukhopadhyay

  • When Silence Speaks: The Way My Mother Taught Me

Sarah Nettleton

  • FC Was the Key

David Newton

  • Me and Lanny

Tom Page

  • Tom Page (Breaking the Barriers)

Nick Pentzell

  • How Things Have Changed

Jeff Powell

  • Letter of Introduction

Sandra Radisch

  • Sandra Radisch (Breaking the Barriers)

Chammi Rajapatirana

  • On Being Mute
  • Thoughts on Facilitated Communication

Heather Rossignol

  • Knowing and Longing

Sue Rubin

  • Living and Thoroughly Enjoying Life in Spite of Autism
  • Whose Life Is It Anyway?
  • A Brief Account of my Life with FC
  • Independent Typing
  • Castigating Assumptions about Mental Retardation and Low Functioning Autism
  • A Recipe For Success
  • In the Footsteps of Cesar Chavez
  • Killing Autism is a Constant Battle
  • On Doing One’s Homework

Nick Russi

  • The Hindrance People

D.J. Savarese

  • D.J. Savarese (Breaking the Barriers)

Jeff Seeger

  • I Dreamed of Being Normal

Jenn Seybert

  • The Jenn and Gene Comedy Hour

Joel Smith

  • This Way Of Life
  • NTs Are Weird (blog)
  • You Have It So Good
  • Autistic Pride Day: Do We Celebrate It Right?

Sarah Stup

  • Are Your Eyes Listening?

Ian Wetherbee

  • The View from Huntington College
  • The View from Huntington College II

Organization Websites

  • The Lonesome Doves
  • Breaking the Barriers
  • Watch Our Words

Books

  • Understand: Fifty Memowriter Poems (David Eastham, 1985)
  • Wenn ich mit euch reden könnte … Ein autistischer Junge beschreibt sein Leben. (Dietmar Zöller, 1989)
  • Ich gebe nicht auf: Aufzeichnungen und Briefe eines autistischen jungen Mannes, der versucht, sich die Welt zu oeffnen. (Dietmar Zöller, 1992)
  • “ich will kein inmich mehr sein” - botschaften aus einem autistischen kerke. (Birger Sellin, 1993)
  • A Child of Eternity (Adriana Rocha, 1995)
  • I Don’t Want To Be Inside Me Anymore: Messages from an Autistic Mind (Birger Sellin, 1995)
  • Ich Deserteur einer artigen Autistenrasse. Neue Botschaften an das Volk der Oberwelt. (Birger Sellin, 1997)
  • Through the Eyes of Aliens: A Book About Autistic People (Jasmine O’Neill, 1998)
  • Lucy’s Story: Autism and Other Adventures (Lucy Blackman, 1999)
  • I Had No Means To Shout! (Charles Hale, 1999)
  • Ich Igelkind. Botschaften aus einer autistischen Welt. (Katja Rohde, 1999)
  • And Love Was All He Said: Growing Up Autistic (Michael J. O’Reilly, 2000)
  • The Light Within (Lincoln Grigsby, 2001)
  • Buntschatten und Fledermäuse. Leben in einer anderen Welt. (Axel Brauns, 2002)
  • The Vial (Chammi Rajapatirana, 2002)
  • Embracing the Sky (Craig Romkema, 2002)
  • Autismus und Körpersprache. Störungen der Signalverarbeitung zwischen Kopf und Körper. (Dietmar Zöller, 2001)
  • Caught Between Two Worlds: My Autistic Dilemma (Thomas Page, 2003)
  • “now you know me think more” (Ppinder Hundal, 2003)
  • Silent Words: Forever Friends (David Eastham, 1990)
  • Beyond the Silence: My Life, the World and Autism (Tito Mukhopadhyay, 2000)
  • Wasted Talent: Musings of an Autistic (Krishna Narayanan, 2003)
  • The Gold of the Sunbeams And Other Stories (Tito Mukhopadhyay, 2006)
  • Do-Si-Do With Autism (Sarah Stup, 2006)
  • The Road Trip: Life With Autism (J. Kevin Vasey, 2005)

Anthologies (may have both aug comm users and others as contributors):

  • Autism and the Myth of the Person Alone (Douglas Biklen, 2005)
  • Sharing Our Wisdom: A Collection of Presentations by People within the Autism Spectrum (Gail Gillingham and Sandra McClennan, 2004)

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