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serenity said in September 8th, 2006 at 12:14

I’m a parent of 2 autistic boys. We just started learning about autism in May. One of the first things we came across was the Autism Speaks- Autism Everyday video. I was floored to hear a woman speak of killing her daughter on camera in front of everyone, including her daughter who was within earshot. I thought “well, maybe that’s just an isolated incident.” But, sadly the more sites I researched, the more I heard the same kind of message repeated. This is all in the name of “awareness”. This isn’t awareness, this isn’t support. I’m sick of hearing it, and reading it. You’re right I shouldn’t even have to think about reassuring my children that I never thought about killing them.
Oh, and I feel the same way about the t-shirts that say “I love my autistic son/daughter” Well, duh. I should hope so!Someone wouldn’t wear a shirt stating that they love their NT son/daughter would they? Of course not, because parents are supposed to love their kids, no matter what.

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abfh said in September 9th, 2006 at 8:42

Amanda, this is a very powerful post, showing that the cure groups aren’t just well-meaning people who disagree with us on therapies or language; their ideology is a profoundly evil perversion of everything that family life ought to be about.

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J said in September 10th, 2006 at 11:37

I never understood the “we’re being supportive” excuse, anyways. How is making it seem normal to want to kill your children supposed to be support?

If someone I knew said they’d thought about, or felt like killing their kids, the first thing I’d do was try to make sure the children were safe. Out of concern for their children, and out of concern for them. A good parent wouldn’t want to harm their kids in a moment of emotional irrationality, and a good friend would see them safe.

Subsequently, if the kids were safe (which depending on how serious the thoughs were, could mean anything from sending them with friends for the day to Child Protective Services), I still wouldn’t tell the woman that these feelings were normal and natural. Understandable, maybe. If they were only thinking about it instead of plotting it, could still see that killing children is horribly wrong, and had called me for help to ensure that they didn’t hurt the kids, I might even go so far as “It doesn’t make you evil.” But thinking about killing your children is a bad thing. At the absolute minimum, it’s a serious problem that requires intervention.

And this isn’t changed at all by the child being autistic. Patting someone on the back for their courage in declaring, “Sometimes I think I should kill my kid,” is just insane. And telling them it’s normal or natural or even okay to think that is dangerous.

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Sara said in September 10th, 2006 at 11:55

This makes me think of some odd behavior that I see from my husband from time to time. In his family there’s an inherited neurological disease that his sister has been exhibiting symptoms of since she was very young. It’s a somewhat rare condition and it took them a very long time to get a diagnosis. After finally finding out what was going on, it turned out that the condition is very treatable and not really a huge deal. You have to take handfulls of pills all day or you won’t be able to walk, but that’s about the extent of the treatment.

My husband has had some mild symptoms of it all his life, and lately they’ve been getting more obvious and more frequent. The condition affects women more greatly than men, so even when things are particularly “bad,” he has a hard time using his legs, and if we happen to be somewhere we’ve gone on foot (the first time this happened was on a rare occasion that we were hiking, and we walk to a lot of places like the grocery store or restaurants), he’ll have to lean on me to make it home. He always gets really embarassed (which I can understand - it’s always inconvenient and nothing he’s used to), but what really throws me for a loop is when he asks me if I really will stay with him “no matter what.” Like I’d leave him because he occasionally has trouble walking? I don’t mind reassuring him, because he needs to know that I love him and will take care of him when he needs it, but it still always takes me aback to hear him question whether I’d leave him over something like that.

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Alison Cummins said in September 10th, 2006 at 19:37

For the Beatles, “no matter what” was being 64. Lots of people have fears of being abandoned when they aren’t as useful as they think they should be.

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Athena Ivan said in September 12th, 2006 at 15:23

Sara: I have asked my significant other this same question as your husband, many times…….

Amanda: I passed by a white minivan(which I’ve seen around the college program office complex off and on) that had the autism awareness decal…………the puzzle thing, on it. It made me come up with the following quote/meme, if you will, that I think would make a pretty cool t-shirt saying………

On the front or the back of it, probably the front since most people see that first…..it would say “autistic pride” in capital letters, with an underline beneath it, and then the following:

If you are ashamed of us, then you should be even more ashamed of yourselves.

I think I will write a blog about that at some point……….I haven’t been up to blogging lately even though I’ve got many drafts going……..for me stuff comes out a little bit at a time……..

AI

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n. said in September 15th, 2006 at 12:13

AI/Sarah, my husband and I sometimes ‘feel’ the need to ask each other this sort of question, too. We ‘know intellectually’ that we’re never going to abandon each other, but sometimes we have a hard time actually feeling that we believe it, having had seen so many other people in the past reject us or others for being like we are.

sorry if this is therapizing of emotions, which i instinctively find repulsive. but in this case it’s a question of it being hard to emotionally remember the thing that you mentally know is true. if that makes any sense.

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Jenan said in April 4th, 2007 at 20:17

Thank you for this. My daughter is autistic, and at least once a week I have to explain why “Autism Speaks” is not a group I support. Some parents take the attitude that any help is better than none. Well…no. We don’t need that kind of help.

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